Transforming the reality of those facing rare challenges
We connect patients, families, and professionals to build a network of comprehensive care, reliable guidance, and ongoing support.
Pró-Raros was founded by families of patients with rare diseases who struggled to find information, treatment, and emotional support.
From this experience, they decided to create a support platform to guide and welcome patients and families, offering access to specialized professionals and connecting those who need help the most.
About Us
What Makes Us Different
Network of Specialists
We connect patients with doctors, psychologists, physiotherapists, and legal professionals experienced in rare diseases.
International Reach
Our network extends across Brazil and abroad, ensuring support regardless of location or condition.
Complex Medications
We provide guidance on high-cost medications through the public health system (SUS), ACESSA SUS, international imports, and off-label use.
Comprehensive Support
From diagnosis to treatment and ongoing care, we stand alongside patients and families every step of the way.
Our Commitment to support people living with rare diseases and complex conditions
Providing resources, trusted information, and connections that transform lives.
CONNECT
No one should face a diagnosis alone. Sharing experiences builds strength, inspires hope, and provides confidence for every step of the journey.
INFORM
We deliver reliable information on treatments, patient rights, and care, empowering families at every stage.
IMPACT
We promote inclusion, research, and access to treatment. Every action creates a positive impact on the lives of those facing rare challenges.