Contact Us
Tell us about your needs, and our team will guide you to the most appropriate support.
The largest national support network for rare patients
Connecting patients, families, and professionals to provide guidance, care, and specialized support.
Why join our network?
Specialists
A list of doctors, psychologists, and physiotherapists specializing in rare diseases, ensuring reliable and personalized guidance.
Emotional Support
Referral to professionals for therapeutic support for patients and families facing daily challenges.
International Connections
Contacts across the country and abroad, providing specialized support regardless of location.
Support at every stage of the rare patient journey
Legal Assistance
Support to ensure patients’ rights with the public health system (SUS) and private health plans.
Medication Importation
Guidance on medications not approved by CONITEC and off-label use.
Access to Medication
Assistance in obtaining treatments through high-cost SUS programs and the Acessa SUS platform.
Every Life Matters
Pró-Raros was created from the dream of families who have faced a long journey seeking accurate diagnosis, treatment, access to high-cost medications, and better quality of life.
Need Support for Rare Diseases?
Our network connects you to professionals and resources so that no one faces the journey alone.
Assessment & Connection
Initial guidance to identify needs, understand your case, and connect you with the right specialists in our network.
Ongoing Care
Support at every stage, from diagnosis to treatment and long-term care, ensuring comprehensive attention.